News

Feb 29, 2024

SMA Europe Launches Benchmarking Report to Improve Care for Adults Living with Spinal Muscular Atrophy

2 comments ·Nov 26, 2023

SMA approved for inclusion in Irish heel prick test

1 comment ·Oct 30, 2023

SMA webinars for physiotherapists - outcome

Oct 20, 2023

Newborn screening in Ireland slips further versus peers

1 comment ·Oct 09, 2023

SMA Physiotherapy Webinar

Oct 02, 2023

Biohaven Advances Promising Therapy for SMA Patients

Sep 20, 2023

Update on Scholar Rock's Apitegromab Trials

Sep 09, 2023

A Goal for SMA Ireland: French Seniors' Football Tournament Raises €1000

Sep 01, 2023

Reimbursement Approval of Evrysdi

May 24, 2023

Ireland continues to fall behind European peers in the heel prick test for newborns

Apr 21, 2023

Risdiplam and WHO model list

Apr 15, 2023

Rare at South Dublin Libraries

Mar 28, 2023

SMA Physiotherapy Masterclass: Learning from Europe's Best

Dec 07, 2022

Call for SMA heelprick pilot programme

Jun 28, 2022

Call for SMA to be added to newborn heel prick test in Ireland without further delay.

1 comment ·Nov 25, 2021

SMA Ireland lodges Patient Submission Document with NCPE regarding Risdiplam

Oct 08, 2021

HSE to reimburse for single-dose Zolgensma gene therapy to treat babies with SMA

Apr 11, 2021

Virtual Physiotherapy Workshop

Apr 04, 2021

Roche Evrysdi Compassionate Use Programme

1 comment ·Mar 30, 2021

EMA approves third SMA treatment, Evrysdi (risdiplam)

Jan 16, 2021

SMA Ireland Annual Meeting