The Voice of
Spinal Muscular Atrophy
in Ireland
The Voice of
Spinal Muscular Atrophy
in Ireland
Spinal Muscular Atrophy
in Ireland
SMA Around the world
Official reaction: SMA Ireland applauds the decision to include Spinal Muscular Atrophy in heel prick test for newborn babies but calls for swift implementation.https://t.co/kEteLdsqXe
— SMA Ireland (@SMAIrelandCom) November 26, 2023
Check out our new InformationHub for everything you need to know about your child going to hospital and finding supports.
— Children in Hospital (@childreninhosp) November 6, 2023
Visit https://t.co/GnSeWU2JVi pic.twitter.com/IYp1w58KBQ
Extremely grateful to @violetannetd for highlighting outrageous inequality w.r.t. adult access to SMA medicine in IRL. ~20 patients left untreated because of arbitrary @HSELive age-based access ceiling. Unjust, inequitable and unethical. #SMAAdults pic.twitter.com/SLyILlCyFW
— SMA Ireland (@SMAIrelandCom) July 9, 2024