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Have you told us your story?

See how SMA impacts the lives of sufferers and their families up and down the country.

Tell us your SMA story?

Please give us some info on your SMA story. These sections are only a guide and don’t all have to all be filled in.
This is just an opportunity to give your story some visibility to help others understand what SMA is.
And possibly to give hope and inspiration to the recently diagnosed.
It’s also an opportunity to say in your own words why a treatment like Spinraza is so important to you.

Answer the questions any way you like to give us a picture of your SMA Story.