Have you added yourself to the SMA Ireland Database?
It has been an ongoing problem as we seek services and treatments for SMA sufferers that there does not seem to be any reliable information available regarding numbers of SMA sufferers. This voluntary database aims to gather information on SMA sufferers and their age and locations in the country to help ensure they are properly represented.
We are asking people for their contact details also. This is so we can keep you informed of what’s going on with SMA in Ireland and other issues that might affect you. This will never be shared with any third party.