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[Independent] Plea: Decision On Drug Approval Is ‘life Or Death’

[Independent] Plea: Decision on drug approval is ‘life or death’

Health Minister Simon Harris has been told his decision on whether to grant access to a revolutionary new drug for children with a rare degenerative condition is one of life or death.

Families, friends, supporters and sufferers of spinal muscular atrophy (SMA) gathered outside the Dáil yesterday calling for access to the drug Spinraza.

Read more at Independent.ie

Anton Mannering

Anton Mannering is step-father of Jordan Perez, a 10 year old boy with SMA type 2. They live in Co. Clare.