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Lourdes Celtic U14 Boys #SpinrazaNOW Video

Lourdes Celtic U14 Boys are asking @SimonHarrisTD to make miracle drug Spinraza available NOW to SMA Sufferers and help save lives. Thanks a lot lads!

Why not make your own quick video and tag it with #SpinrazaNOW @SMAIrelandCom to show your support.

Anton Mannering

Anton Mannering is step-father of Jordan Perez, a 10 year old boy with SMA type 2. They live in Co. Clare.