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[Galway Bay FM] Keith Finnegan Show Galway Bay FM – Karen Mannion on her brother Gearóid’s stories, SMA and Spinraza

Karen Mannion talks about her brother Gearoid P. Mannion who had SMA type 2 and died at 21. She and her family are publishing a book of short stories and essays written by Gearoid before his death.

She discusses SMA how the condition often sees sufferers being extremely high functioning intellectually and how Spinraza a new treatment might have made a difference had it been available at the time.

She also mentions the upcoming book launch of  “The Long Lost Short Stories of Gearóid P. Mannion” at the Station House Theatre, Clifden during the Clifden Arts Festival, Sunday 23rd September at 3pm.