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[Irish Mirror] Irish Mother Pleads With Government To Approve ‘miracle-drug’ That Could Save Her Son With Life-threatening Disease

[Irish Mirror] Irish mother pleads with government to approve ‘miracle-drug’ that could save her son with life-threatening disease

An Irish mother has made an emotional plea to Health Minister Simon Harris and the government to approve a new ‘miracle-drug’ that could save her seriously ill son.

Eight-year-old Sam Bailey suffers from Spinal Muscular Atrophy, a rare and life-threatening disease with few known treatments.

His condition means Sam is confined to a wheelchair and must be fed through a tube.

However, Spinraza is a new drug being used to treat the disease and has been approved for use in a number of countries around the world, but not yet in Ireland.

Sam’s mother Fiona is now calling on the government and Health Minister Simon Harris to give the so-called ‘miracle-drug’ the green light for use in Ireland as soon as possible, potentially transforming her son’s life.

Read more at IrishMirror.ie

Anton Mannering

Anton Mannering is step-father of Jordan Perez, a 10 year old boy with SMA type 2. They live in Co. Clare.