An Irish mother has made an emotional plea to Health Minister Simon Harris and the government to approve a new ‘miracle-drug’ that could save her seriously ill son.
Eight-year-old Sam Bailey suffers from Spinal Muscular Atrophy, a rare and life-threatening disease with few known treatments.
His condition means Sam is confined to a wheelchair and must be fed through a tube.
However, Spinraza is a new drug being used to treat the disease and has been approved for use in a number of countries around the world, but not yet in Ireland.
Sam’s mother Fiona is now calling on the government and Health Minister Simon Harris to give the so-called ‘miracle-drug’ the green light for use in Ireland as soon as possible, potentially transforming her son’s life.