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[Herald] ‘Don’t Let These Kids Die’ – Protesters Take Drug Fight To The Dail

[Herald] ‘Don’t let these kids die’ – Protesters take drug fight to the Dail

Health Minister Simon Harris has been told his decision on whether to grant access to a revolutionary new drug for children with a rare degenerative condition is one of life or death.
Families, friends, supporters and sufferers of spinal muscular atrophy (SMA) gathered outside the Dail yesterday to call for access to the drug Spinraza.

The only drug ever manufactured to treat SMA, a degenerative neuromuscular disorder, it is licensed, available and changing lives across the globe.

However, it has yet to be approved for general reimbursement in Ireland.