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CrossFit Na Sionna #SpinrazaNOW Video

Crossfit Na Sionna are asking Simon Harris to make miracel drug Spinraza availabe NOW to SMA Sufferers and help save lives.

Why not make your own quick video and tag it with #SpinrazaNOW #SMAIreland to show your support.

Anton Mannering

Anton Mannering is step-father of Jordan Perez, a 10 year old boy with SMA type 2. They live in Co. Clare.